Go inside the minds of doctors who specialize in hemophilia — a rare, inherited bleeding disorder that once meant possibly not surviving past the age of 20. This season, we’ll explore the medical milestones that enable patients today to live longer, richer lives and examine the challenges yet to be tackled.
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A 5-year-old child and his parents boarded a plane heading for a new life. But soon after arriving in their new country, there’s a problem. The child has hemophilia and due to complications, a minor injury while traveling became a major concern.
Despite signs throughout his life, it was only after unforeseen complications of a simple procedure that a 61-year-old patient received the hemophilia diagnosis that had long evaded him. Hear this patient’s journey to a proper diagnosis.
A child with severe hemophilia wants to play sports — a great risk for people with hemophilia. Hear how he, his family and care team, navigated the challenges of growing up with hemophilia.
About 40 years ago a mother brought her 6-month-old child into the hospital, covered in bruises. Diagnosed with severe hemophilia and with only reactive treatment options available, normal childhood activities could lead to devastating bleeds.
A 30-year-old was in labor with her first child. Everything was going to plan … until it wasn’t. In this episode, hear a story that illustrates how a long-held misunderstanding of hemophilia in women has had severe consequences.
For decades, a patient suffered from joint disease caused by severe bleeding in his knees from a rare blood disorder — hemophilia A. The patient was born in the 1960s, a time when his life expectancy was only 10 years.
